Discussion:A bit of an update....

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Discussion Forum Index --> General Chat --> A bit of an update....

Taocpa (talk|edits) said:

9 July 2008
Well, I promised an update for anyone interested. I have been lurking for a bit, jumping into the fray when I felt the urge.

The last two months have been a heck of a journey figuring out how to balance life with a new illness that will be with me until I am called home. It's still clinically not MS, but I have all the darn symptoms and frankly, I just tell everyone I have it. It's just easier.

The new medication is starting to works its way into my system. It took a bit to get used to but I tolerate it well.

The biggest problem is depression. MS is and can be depressing.

I am in physical therapy at least two days a week. My therapist is great (and gorgeous). She is teaching me about being patient with this whole challenge. That, I confess, I am not.

There is more, mostly boring, but I wanted to let you know I am still here. I miss the interaction with you right now and I could use some encouragement. So if you feel like sharing some, it would be helpful.


Pegoo (talk|edits) said:

9 July 2008
I hope you feel better soon..... =(

If you don't mind me asking... What is MS?

Taocpa (talk|edits) said:

9 July 2008
It's known as multiple sclerosis.

It's an illness of your central nervous system. It attacks your brain and other parts of your central nervous system like your spine and neck.

They found several lesions on my brain in May. Recent testing showed some that I might have some in my neck. I won't have that confirmed until August.

Basically, my brain short-circuited. They don't know what causes it. Most likely, I had this illness for years and never knew it. But now that I look back, it explains several events that occurred in the last few years.


Pierce (talk|edits) said:

9 July 2008

Great to have an update. So sorry you are having to go through this. Have been thinking of you.

Count your blessings every day. Supportive family, good doctors, gorgeous therapist, etc.

Actionbsns (talk|edits) said:

10 July 2008
Take care Tom, and keep us posted. You know you are in good company, I believe Annette Funicello developed MS while she was still filming with Disney. For those of you too young to know, she was one of the original Mouseketeers and unfortunately for her, the first of the girls to outgrow her sweater. Lot's of jokes around that event. There are other's also of note.

Sandysea (talk|edits) said:

10 July 2008

Blessings coming your way. I have dealt with MS, Autism, CP and many other issues in my life and I know for a fact that all are debilitating.

But keep in mind one thing:

The "normal" is not an adequate phrase...."average" is the terminology. Whenever you hear not "normal" I take offense. You are certainly more than able to do that which should be done. Tom, my prayers are with you. Take heart...God watches out for those of us who are not in the "normal" range. You are intelligent, kind and above all one of a kind!!


Fsteincpa (talk|edits) said:

10 July 2008
Tom, you said she was gorgeous. gotta like that in a physical therapist. Just be careful with that ol stumble and grab trick. Can get you in trouble.

Be good man. Keep plugging away.

Belle (talk|edits) said:

July 21, 2008
Tom, thanks for the update, you do have a large,caring support group here at TA.

I have a neighbor who has had MS for over twenty years, and is 'functioning' just fine, great quality of life. Just proof/encouragement that it is possible.

This suggestion is a 'do as I say, not as I do(yet)' idea. Consider getting into meditation/yoga..things to help with the mental side (the depression/anxiety/impatience). The people I know who do those things, I admire their outlook on life and the balance they seem to have. It's on my list of to-do's this fall (have to survive my summer crisis issues first). I know, I know - cart before the horse. Perhaps my summer would go easier if I learn to relax first?

Keep us up to date, even if nothing major changes.

And take Fred's advice - don't risk losing a great (and good looking) PT by stumbling too often, you might end up with 'Igor'

Taocpa (talk|edits) said:

21 July 2008

Thanks for the encouragement. I need it badly.

I haven't weighed in because I am a bit stressed. I met with one of my doctors today and have to go back next week. He wants to re-evaluate some medicines.

I struggle with fatigue right now in a big way. Last week I pushed to catch a client up and paid for it in a huge way.

I am putting too much pressure on myself, hence the stress factor. I am trying to balance business and personal. Right now, my health is first and clients are just going to have to understand that. Some haven't and I am going to dump a couple if it keeps up.

I no longer answer my phone for business on the weekend. Besides this weekend my daughter was very sick and she came first. A client wanted to drop his return off Saturday. I blew him off and will call him today.

I don't want to get preachy, but I am really relying on prayer as much as I can as a form of meditation. It's been helpful in many ways. Yoga for me? Not a good visual. Look at my photo.

By the end of the week, I am on a full dose of the MS medicine. I am praying for it to really help. It's been helpful, but I hear the full dose really helps.

Last night, I had the best laugh I've had in a while. I watched an old "Newhart" episode when the introduced Larry, Darryl and Darryl. It was wonderful therapy. It was definitely needed.

I really appreciate the support. It's very helpful. I check this place everyday. I will be back in full force soon.


Belle (talk|edits) said:

July 21, 2008
I'm not much in to prayer; but glad you have that to help.

I suggest you GET OVER the weekend business BS :-). The client's shouldn't expect you to be available on the weekends, especially non-tax season. Perhaps that one should be on the CTOBET list. Go for the laughter - all research indicates that it is very therapeutic (sp). My choice these days - old "M.A.S.H. reruns. Even when I remember the ending in advance, I still laugh all the way thru. Stay in touch, Belle

Taocpa (talk|edits) said:

21 July 2008
I've always enjoyed a good laugh. The last couple of months, I've struggled to find funny things. When I saw the episode was on, I had to watch. I realize it's very therapeutic.

I never understand why clients think it's okay to call on weekends outside tax season or for that matter after 5pm. I am no longer going to jump through the hoop. If they can't call during hours, then tough.

I might take a shot at yoga, given my Pillsbury doughboy look.

I will tell you what gets to you is the heat. It's miserable. I was outside for 1/2 hour two weeks ago. I was asleep for two after that. It takes your energy. I need to cool off more during the day and not overheat. That's a big problem.

I appreciate the support. It means so much to me.


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